{"id":6341,"date":"2026-10-19T09:48:47","date_gmt":"2026-10-19T09:48:47","guid":{"rendered":"https:\/\/phd.hi.is\/doktorsvorn\/doktorsvorn-i-heilbrigdisvisindum-jonina-sigurgeirsdottir\/"},"modified":"2026-10-19T09:48:47","modified_gmt":"2026-10-19T09:48:47","slug":"doktorsvorn-i-heilbrigdisvisindum-jonina-sigurgeirsdottir","status":"publish","type":"phd_defence","link":"https:\/\/phd.hi.is\/en\/doktorsvorn\/doktorsvorn-i-heilbrigdisvisindum-jonina-sigurgeirsdottir\/","title":{"rendered":"Doktorsv\u00f6rn \u00ed heilbrig\u00f0isv\u00edsindum – J\u00f3n\u00edna Sigurgeirsd\u00f3ttir"},"content":{"rendered":"
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M\u00e1nudaginn 18. september 2023 ver J\u00f3n\u00edna Sigurgeirsd\u00f3ttir doktorsritger\u00f0 s\u00edna \u00ed heilbrig\u00f0isv\u00edsindum vi\u00f0 L\u00e6knadeild H\u00e1sk\u00f3la \u00cdslands. Ritger\u00f0in ber heiti\u00f0: Sj\u00e1lfstj\u00f3rnun \u00ed langvinnri lungnateppu (LLT): \u00a0Reynsla sj\u00faklinga, fj\u00f6lskyldna og me\u00f0fer\u00f0arl\u00e6kna. Self-Management in Chronic Obstructive Pulmonary Disease (COPD): \u00a0Patients\u2019, Families\u2019,and Principal Physicians\u2019 Experiences.<\/p>\n

Andm\u00e6lendur eru dr. Kirsten Elisabeth Lomborg, pr\u00f3fessor vi\u00f0 Steno Diabetes Center \u00ed Kaupmannah\u00f6fn, og dr. Sigur\u00f0ur Kristinsson, pr\u00f3fessor vi\u00f0 H\u00e1sk\u00f3lann \u00e1 Akureyri.<\/p>\n

Umsj\u00f3narkennari var Gunnar Gu\u00f0mundsson, pr\u00f3fessor og lei\u00f0beinandi var Sigr\u00ed\u00f0ur Halld\u00f3rsd\u00f3ttir, pr\u00f3fessor. Auk \u00feeirra s\u00e1tu \u00ed doktorsnefnd Ey\u00fe\u00f3r Hreinn Bj\u00f6rnsson, lungnal\u00e6knir og Ragnhei\u00f0ur Harpa Arnard\u00f3ttir, d\u00f3sent.<\/p>\n

Dr. \u00de\u00f3rarinn Gu\u00f0j\u00f3nsson, pr\u00f3fessor og deildarforseti L\u00e6knadeildar, stj\u00f3rnar ath\u00f6fninni sem fer fram \u00ed H\u00e1t\u00ed\u00f0asal H\u00e1sk\u00f3la \u00cdslands og hefst kl. 13.00.<\/p>\n

\u00c1grip<\/strong><\/p>\n

Markmi\u00f0 doktorsverkefnisins var a\u00f0 kanna reynslu sj\u00faklinga me\u00f0 langvinna lungnateppu (LLT), helstu fj\u00f6lskyldume\u00f0lima \u00feeirra og me\u00f0fer\u00f0arl\u00e6kna \u00feeirra af \u00fev\u00ed a\u00f0 efla sj\u00e1lfstj\u00f3rnun (e. self-management). \u00c1kve\u00f0i\u00f0 var a\u00f0 nota eigindlega a\u00f0fer\u00f0afr\u00e6\u00f0i, Vancouver-sk\u00f3lann, sem hefur reynst vel vi\u00f0 a\u00f0 rannsaka fl\u00f3kna l\u00edfsreynslu. Markmi\u00f0 Vancouver-sk\u00f3lans er a\u00f0 auka \u00feekkingu og d\u00fdpka skilning \u00e1 mannlegum fyrirb\u00e6rum. \u00de\u00e1tttakendur voru samtals 29 og teki\u00f0 var eitt til tv\u00f6 vi\u00f0t\u00f6l vi\u00f0 hvern \u00feeirra, alls 35 vi\u00f0t\u00f6l. \u00deau voru skrifu\u00f0 or\u00f0r\u00e9tt upp og gagnagreiningin f\u00f3lst \u00ed \u00fev\u00ed a\u00f0 brj\u00f3ta setningar ni\u00f0ur \u00ed \u00feekkingareiningar (e. deconstruction) og tengja \u00fe\u00e6r saman til a\u00f0 gefa heildars\u00fdn \u00e1 fyrirb\u00e6ri\u00f0 sem rannsaka\u00f0 var (e. reconstruction), til a\u00f0 svara ranns\u00f3knarspurningunum. LLT haf\u00f0i neikv\u00e6\u00f0 \u00e1hrif \u00e1 l\u00edkamlega, andlega og f\u00e9lagslega l\u00ed\u00f0an \u00fe\u00e1tttakandi sj\u00faklinga. \u2018Svekkt umhyggja\u2019 var kjarninn \u00ed reynslu n\u00e1inna fj\u00f6lskyldume\u00f0lima af \u00fev\u00ed a\u00f0 hvetja sj\u00faklingana til sj\u00e1lfstj\u00f3rnunar. Vi\u00f0 fundum ferli dv\u00ednandi sj\u00e1lfstj\u00f3rnunar sj\u00faklinga \u00ed \u00feremur \u00e1f\u00f6ngum sem marka\u00f0ist af \u00fev\u00ed hversu langt gengin LLT var, upphafsstig, millistig og langt gengin, \u00e1 sama t\u00edma og um\u00f6nnunarbyr\u00f0i a\u00f0standenda j\u00f3kst og f\u00e1 \u00f6nnur \u00farr\u00e6\u00f0i voru til sta\u00f0ar. Fj\u00f6lskyldume\u00f0limir \u00f3sku\u00f0u eftir formlegri \u00fer\u00edhli\u00f0a tengingu milli sj\u00faklings, a\u00f0alfj\u00f6lskyldume\u00f0lims og me\u00f0fer\u00f0arl\u00e6knis til hagsb\u00f3ta fyrir sj\u00fakling og fj\u00f6lskyldu. Me\u00f0fer\u00f0arl\u00e6knar sj\u00faklinganna m\u00e6ttu \u00fdmsum \u00e1skorunum sem sneru a\u00f0 \u00fev\u00ed a\u00f0 hvetja sj\u00faklinga til sj\u00e1lfstj\u00f3rnunar, leita jafnv\u00e6gis milli \u00feess a\u00f0 standa vi\u00f0 ei\u00f0staf l\u00e6kna um a\u00f0 stu\u00f0la a\u00f0 heilsueflandi og l\u00edfsbjargandi me\u00f0fer\u00f0, en vir\u00f0a jafnframt val sj\u00faklings um a\u00f0 hafna me\u00f0fer\u00f0. Me\u00f0fer\u00f0arl\u00e6knar eru hvattir til a\u00f0 greina \u00fearfir og bjargr\u00e1\u00f0 sj\u00faklinga me\u00f0 LLT og gr\u00edpa t\u00e6kif\u00e6ri\u00f0 til a\u00f0 fr\u00e6\u00f0a \u00fe\u00e1 markvisst \u00e1 mismunandi stigum sj\u00fakd\u00f3msins til a\u00f0 efla sj\u00e1lfstj\u00f3rnun \u00feeirra, g\u00e6ta a\u00f0 \u00fev\u00ed a\u00f0 um\u00f6nnunarbyr\u00f0i n\u00e1nustu a\u00f0standenda ver\u00f0i ekki of mikil og a\u00f0 sj\u00faklingar og a\u00f0standendur f\u00e1i n\u00e6ga fr\u00e6\u00f0slu og stu\u00f0ning.<\/p>\n

Abstract<\/strong><\/p>\n

The aim of this doctoral thesis was to explore Chronic Obstructive Pulmonary Disease (COPD) patients\u2019, their principal family members\u2019, and their principal physicians\u2019 experience of enhancing patients\u2019 self-management (SM). For increasing knowledge and deepen the understanding of complex human experiences, it was decided to use a qualitative methodology, specifically the Vancouver School of doing phenomenology, a methodology that has proven successful in studying people\u2019s complex life experiences. The goal of the Vancouver School is to increase knowledge and deepen understanding of human phenomena, e.g., within health care services. Participants in the study were 29, and one or two interviews were conducted with each of them, in total 35 interviews. The interviews were written down verbatim and then analyzed, by breaking down sentences into knowledge units (deconstruction), after which the knowledge units were connected to give an overall view of the phenomenon being studied (reconstruction), thereby answering the research questions. COPD negatively affected participants\u2019 physical and psychosocial well-being, their family relationships, and social life. \u2018Frustrated caring\u2019 was the essence of principal family members\u2019 experience of motivating a COPD patient towards SM. We found a sequential process in three phases of the patient\u2019s declining SM as the disease progressed, early, intermediary, and advanced phase, while the family\u2019s caregiving burden increased over time, and few resources were available. The principal family members wished for a formal tripartite connection between the patient, principal family member and principal physician for the benefit of patient and principal family. The physicians treating the patients faced various ethical challenges in encouraging patients to self-manage eg., to find a balance between upholding the doctors\u2019 oath to promote health and save lives, while at the same time respecting the patient\u2019s choice to refuse treatment. Physicians are encouraged to identify the needs and coping strategies of patients with COPD and take the opportunity to educate them in a targeted way at different stages of the disease to promote their SM. Care must be taken that the burden of caring for principal family members does not become too great and that patients and family receive sufficient education and support.<\/p>\n

Um doktorsefni\u00f0<\/strong><\/p>\n

J\u00f3n\u00edna Sigurgeirsd\u00f3ttir er f\u00e6dd \u00e1ri\u00f0 1962 \u00ed Reykjav\u00edk. H\u00fan lauk st\u00fadentspr\u00f3fi fr\u00e1 m\u00e1ladeild Verslunarsk\u00f3la \u00cdslands \u00e1ri\u00f0 1982 og fimm \u00e1rum s\u00ed\u00f0ar BS-pr\u00f3fi fr\u00e1 Hj\u00fakrunarfr\u00e6\u00f0ideild H\u00e1sk\u00f3la \u00cdslands. J\u00f3n\u00edna \u00fatskrifa\u00f0ist me\u00f0 MS-pr\u00f3f 2006 fr\u00e1 Royal College of Nursing \u00ed London og Heilbrig\u00f0isdeild H\u00e1sk\u00f3lans \u00e1 Akureyri og f\u00e9kk vi\u00f0urkenningu Emb\u00e6ttis landl\u00e6knis \u00e1 s\u00e9rfr\u00e6\u00f0ir\u00e9ttindum \u00ed endurh\u00e6fingarhj\u00fakrun \u00e1ri\u00f0 2008. H\u00fan hefur stunda\u00f0 doktorsn\u00e1m \u00ed endurh\u00e6fingu samhli\u00f0a starfi s\u00ednu \u00e1\u00a0 Reykjalundi \u00fear sem doktorsverkefni\u00f0 var unni\u00f0. Foreldrar J\u00f3n\u00ednu voru Gu\u00f0munda J\u00f3nsd\u00f3ttir, h\u00fasm\u00f3\u00f0ir og b\u00f3ndi, og Sigurgeir J\u00f3nsson, b\u00fafr\u00e6\u00f0ingur, b\u00f3ndi og \u00fatib\u00fasstj\u00f3ri Kaupf\u00e9lags Austur-Skaftfellinga, en \u00feau eru b\u00e6\u00f0i l\u00e1tin. J\u00f3n\u00edna er gift \u00d3lafi Thoroddsen rafeindavirkja og umsj\u00f3narmanni fasteigna. \u00deau eiga fj\u00f6gur b\u00f6rn, Evu, Sigurgeir, \u00d3laf J\u00f3n og Gu\u00f0mund \u00c1g\u00fast.<\/p>\n<\/div><\/div>","protected":false},"featured_media":5644,"template":"","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"_phd_date_start":"2023-09-18T13:00:00+00:00","_phd_date_end":"2023-09-18T16:00:00+00:00","_phd_location":"A\u00f0albygging H\u00e1t\u00ed\u00f0asalur","_phd_admission":"A\u00f0gangur \u00f3keypis","_phd_thesis_title":"Sj\u00e1lfstj\u00f3rnun \u00ed langvinnri lungnateppu (LLT): Reynsla sj\u00faklinga, fj\u00f6lskyldna og me\u00f0fer\u00f0arl\u00e6kna. 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